One half of The Veronicas Jess Origliasso has opened up about her mother’s battle with a rare degenerative disease, progressive supranuclear palsy.

In an Instagram post on International Women’s Day, Origliasso shared a family photo with her mum Colleen and sister Lisa – “the two strongest women I know.”

“Our mummy was finally diagnosed with an extremely rare neurological condition called #Progressivesupranuclearpalsy after many misdiagnoses,” she wrote.

“It presents itself in the most cruel and debilitating symptoms, losing all motor and cognitive function over the course of a few years.

“I won’t begin to tell you here what that looks like. It’s absolute hell.”

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#internationalwomensday -*trigger warning : Illness* To the two strongest women I know. Our mummy was finally diagnosed with an extremely rare neurological condition called #Progressivesupranuclearpalsy after many misdiagnosis. Only 1300 Australian’s have ever been diagnosed. There is no cure, no treatment, & little to no research, support or funding to do with this disease. It presents itself in the most cruel & debilitating symptoms, losing all motor & cognitive function over the course of a few years. I won’t begin to tell you here what that looks like. It’s absolute hell. Because of the lack of research & information available, each step & new symptom of this disease is discovered through the experience of living it. We were never given timelines. We are forced to live in perspective of this disease. I will never have the words to explain how unbearable it is to see someone you love go through something like this. The awareness of this disease comes second only to the note of strength my incredible Mummy has shown every step of the way. We are so blessed she is our mummy. We don’t share the reality of this part of our lives. Its private, too confronting, too devastating and almost beyond our human capacity to process the daily grieving and energy required. We don’t share any photos or videos of what really goes on behind the smiling photos, but to those who know the reality of terminal illness, our hearts are with you. It is International woman’s day, and this petite, brave, hilarious, brilliant, strong and compassionate woman is our bestfriend, our day 1, and greatest inspiration in all we do. Our mama taught us to work hard, stay humble & believe in ourselves. She taught us about standing up for ourselves in a patriarchal society, just by celebrating who we are, and never ever minimising what makes us all unique ???? And now through this we learn a greater strength and love bonded together, that will last our lifetimes. Happy International Woman’s day to my angel mama and my beautiful, strong @lisa_veronica and all identifying woman out there holding it down behind social media. We are strong ???????? and together we are even stronger????

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Around 1,300 Australians have been diagnosed with the condition, according to PSP Australia, a support group for people affected by progressive supranuclear palsy. Many more cases go undiagnosed.

Symptoms include loss of balance, slowing of movement and dementia, and for this reason it is sometimes mistaken for Parkinson’s or Alzheimer’s disease.

There is no cure for the condition.

“We were never given timelines, we are forced to live in perspective of this disease,” Origliasso wrote.

“I will never have the words to explain how unbearable it is to see someone you love go through something like this.

The duo have long been open about their mother’s condition but rarely shared personal insights into their life.

Several commenters used the opportunity to share their own experience of having relatives with the disease.

“My mother has recently been diagnosed with this horrific disease,” replied one person.

“I feel for you and your family as I know EXACTLY what you are going through. Very sad, very trying, a complete rollercoaster ride of emotion.”

“My Nan had this disease as well. It’s extremely cruel!! My heart goes out to you both,” wrote another.

Origliasso used International Women’s Day to pay tribute to her mum’s personal strength and acknowledge other people suffering with the disease.

“The awareness of this disease comes second only to the note of strength my incredible Mummy has shown every step of the way,” she wrote.

“We don’t share any photos or videos of what really goes on behind the smiling photos, but to those who know the reality of terminal illness, our hearts are with you.”

Image: Instagram / @jessicaveronica